Time to play catch up!

So, we got a new computer! I am going to try to keep everyone updated now. Where do i even begin? I will start with the newest member of our family. We had a beautiful little girl on October 13, 2009. Edynn (Eden) McKinley Breedlove. She came a little early (4weeks) but still managed to be 8 lbs 15 oz. I am kinda glad that she came early. Everything seemed fine after delivery so she got to go to postpartum room with me, which was a relief after our ordeal with Jaxson as a newborn.

About 18 hrs after she was born the nurse came in to do an assessment and thought she was working a little too hard to breathe. So they took her to the nicu and once again we wonder what now? Come to find out she had broken her collar bone during delivery and her lungs were not quite developed. The nurses kept referring to everything has problems that are common in preemies, but we had a very hard time calling her a preemie at almost 9 pounds. She had what was called "stridor" when she breathed. It is a really squeakiness that would get worse when she cried or ate. They were concernedd that there was something blocking her airway causing this. So, here we go again.

After many test and 8 days later, we were told that they thought she had tracheamalasia. it is where the trachea and larynx is "floppy". They put her on thickened breast milk and heart monitor and told us we could take her home. We would have to take her to Indianapolis to an ENT to confirm the diagnosis with a scope. Just what we needed another doctor to see in Indianapolis. at least Jaxson already sees one down there that we were comfortable taking her to. So, at 8 days old we got to take her home.

We here home for 4 days and she began running a fever. We took her to the ER and they many test. Since she was only 12 days old they decided that they would admit her back to their nicu. They immediately put her on antibiotics and antivirals for precautions. They would do so until her blood cultures and spinal tap came back. they fever finally broke and thought as long as cultures came back fine, we would get to go home again. WRONG! Her blood cultures came back as positive growth. This would mean they would have to put a picc line in and do 10 to 14 days of antibiotics. We just wanted to take her home and be a normal, happy family.

The hospital policy was to then send the cultures out to see exactly what bug it was. Meanwhile they put a picc line in and continued the antibiotics. on day 5 of treatment they got results back from the microbiology place, and the had found that the bacteria that grew was just from contamination of the blood from where the nurse drew it. NICE! but the doctors decided that since the picc was already in they would finish a 7 day treatment then we could go home. So finally, jsut shy of being three weeks old she was home!

We then made the trip to Indianapolis to the ENT where he did a scope and thought it was not tracheamalasia, it was just a severe case of reflux (common in preemies). So the wanted to continue thickening the breast milk and put her on Zantac. Which once again meant that I could not breast feed her either.

The beginning of December she a very bad cold(from Jaxson) and was put in the hospital, to later find out that it was RSV. They did breathing treatments and Oxygen for a couple days and we were home again. She has been good since then. She still constantly spits up and his quite the fussy baby, but she sleeps better than Jaxson ever did. I will put her down about 8 pm and she does make a peep till about 6or 7 when she wakes up for a bottle then goes back to sleep for a couple more hours. It is so nice to be able to sleep!

An update on Jaxson: He is a BRAT!!! No, he is doing great being a big brother. Sometimes he is a little more help than I need. As for his health: it really has been quite well. Saw the cardiologist in December and said the artery was narrowing and would probably need replaced with the year. The surgeon that does is bowels is at a standstill and is not sure what to do now. He is sending us to a doctor at Cincinatti Childrens Hospital, who can hopefully give us a few more options. Still not promising that we will ever potty train.

When he turned 3 he transferred out of First steps for physical and speech therapy, but he did not qualify for developmental preschool through the school system. they thought he had progressed enough to be a level with kids his age. That was great news! He is currently going to preschool and a lady around here. She has preschool at her house just one day a week, all day. He was went for a few weeks now and seems to love it. She says he gets a little teary sometimes and wants mommy, but overall for his age is doing good.

Other family news: we are still living in her our house just outside of Delphi and Steve is still working at Carroll High School. I stay at home and enjoy the kids. We are on the go a lot but they seem to like it that way. I have to go to Lafayette 3 days a week to pick Mom up from dialysis, so I try to do all of my running on those days.